Protected: Volunteer Portal
Categories: Volunteer
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CurePSP Cancels In-Person Events
From Bill McFarland, Chair, Board of Directors On behalf of the CurePSP, Inc., Board of Directors, I’m writing to let you know that given the continued uncertainties created by the COVID-19 pandemic, and without a predictable avenue to safely bring together our caregivers, healthcare partners, and volunteers, we have been forced to cancel our in-person conferences, events, …
Question and Answer with Ileen McFarland
Ileen McFarland, CurePSP Board Member and Dallas support group facilitator, talks to us about her upcoming event, Hope Squared, and about the motivation behind being one of CurePSP’s most active advocates. What is your history with PSP and caregiving? My late husband was diagnosed with Parkinson’s in September of 2006, and PSP in 2007. After …
A Good Mind In A Useless Body.
This very insightful article, by John Royer, our PSP correspondent, argues that PSP can’t take your loved one away if you don’t let it. I’ve been noticing that a lot of people say that their spouse or parent is gone because they cannot speak, they cannot communicate. I think it is a mistake to …
Update from John Royer, PSP Correspondent
This is article seven from John Royer, a man living as humorously as possible with PSP. Last night I was wondering about a cause for PSP. I thought about the fact that since I was born in 1945 I have been inhaling radioactive dust along with everyone else alive today. I also considered other factors. …
Update from John Royer, PSP Correspondent
This is article six from John Royer, a man living as humorously as possible with PSP. It’s the middle of May and I feel better and I haven’t fallen once. My early-morning dizziness is still with me but it is not as bad as it used to be. My walking varies from hour to hour. …
Presenting at the Addison Rotary Club, Dallas
On Friday, April 7, CurePSP Chair Emeritus and long-time neurodegeneration advocate, John Burhoe Sr., presented to the Addison rotary Club, Dallas, on progressive supranuclear palsy (PSP) and related brain diseases. His talk encompassed the pathology of PSP, and how research into a cure for PSP potentially means treatment and cure for other brain diseases such as …
Why Advocacy is Vital
In this article, Trish Caruana, Vice President – Patient and Carepartner Advocacy explains what advocacy is, and the common hurdles people face when considering advocacy. Care, consciousness and cure are central to the mission of CurePSP, but how we advocate for people with PSP and other prime of life diseases is also important. The lack of …
New York Opens First Support Group!
We are very happy to announce our first support group in New York! Our New York Support Group Leader Training sessions in August were a great success, and we can happily announce the following support group for PSP patients and carepartners, in Manhattan, NY. The support group meeting will be held; October 11th, at …
First time fundraisers raise over $32,000!
Categories: Volunteer
Wine in the Hill Country We wish to congratulate Kary Cataldi for a hugely successful wine tasting event in Honor of Mark Witt on Saturday, October 8, at the Weingarten in the celebrated Pontotoc Vineyard, Texas. The day included not just beautifully crafted American wines with perfectly paired food, but also live music and a silent …
Jennings Kroemer Putt For PSP
On Saturday July 30th the Jennings and Kroemer families hosted the 11th annual Putt For PSP, in Syracuse Indiana. The day was a huge success, and CurePSP’s very own Director of Events Jaclyn Zendrian attended. “I want to go again next year,” said Jaclyn, ‘everyone was really nice and the location was spectacular.” The money …