CurePSP Brain Donation Assistance Program
A diagnostic service for families. A contribution to science, leading a path toward a cure.
Thank you for considering a brain donation through the CurePSP Brain Donation Assistance Program.
CurePSP is dedicated to our mission to raise awareness, build community, improve care, and find a cure for progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), multiple system atrophy (MSA), and related neurodegenerative diseases. The vision of CurePSP is a world free of neurodegeneration, so that future generations will not have to experience the complicated care and emotional journeys of these diseases. The study of brain tissue is critical in the path toward this goal. Since the founding of CurePSP’s Brain Donation Assistance Program in 1998, we have proudly supported the donation of hundreds of brains. These donations have enabled leading scientists all over the world to advance important knowledge in prime of life neurodegenerative disorders.
Brain donations are a precious gift for science, establishing a long-term legacy of scientific progress that otherwise would not be possible. Brain tissue donated through this program is carefully studied by researchers working hard to understand human neurobiology and the causes of neurodegeneration. Brain donations have led, and will lead, to breakthroughs in science and the development of treatments and—ultimately—cures for PSP, CBD, MSA, and related diseases.
Importantly, after the donation, the next of kin will receive a comprehensive report that outlines the confirmed pathological diagnosis, as well as other possible contributing or coincidental pathologic processes. Many families who have participated in this program have shared with us that this report offered them answers and a step toward closure after many years of navigating a complicated disease journey and caring for their loved one.
By donating your brain, you build the most powerful legacy for yourself, your family, and science, as well as hope for others affected by neurodegenerative disorders. I want to share my sincere appreciation for your consideration of participating in the CurePSP Brain Donation Assistance Program. Please do not hesitate to reach out to the CurePSP team if we can be of any assistance or support as you navigate the process of brain donation.
Because hope matters,
Kristophe Diaz, PhD
Executive Director and Chief Science Officer CurePSP, Inc.
For next steps on brain donation, brain tissue questionnaire, medical release to send notes to Mayo Clinic, consent for autopsy and donation of brain tissue, autopsy information form, and medical release to send report to physician, please download the full brochure below. If you would like for us to mail you a hard copy of the packet, please contact us at info@curepsp.org or 800-457-4777“