Online Support Groups
Support groups are safe and dedicated spaces to connect with and learn from individuals and families on similar journeys. To support our community of people impacted by progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA), CurePSP is pleased to offer a variety of national, virtual support groups. You can also click here to find additional regional support offerings.
View all online support group offerings
TO REGISTER AND USE:
- Click the meeting link for the group that suits you and register for the online program
- At the meeting time, use your computer to go online and follow the meeting link for your group
- Follow the prompts and choose to either listen in with your computer’s microphone and speakers or follow the instructions to dial in with your phone (instructions also included below)
- All meetings are listed in Eastern time
For more information about the meeting you want to participate in, please contact the Facilitator. If you have other questions about support services, please email info@curepsp.org.
| Sun | Mon | Tue | Wed | Thu | Fri | Sat |
|---|---|---|---|---|---|---|
| Women Care Partners of People with PSP/CBD/MSA Support Group 2:30 pm Women Care Partners of People with PSP/CBD/MSA Support Group May 2 @ 2:30 pm – 3:30 pm Meeting Time(s): First Thursday of each month from 2:30pm-3:30pm EST and third Wednesday of each month from 6:30-8:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIod–prDIiG93cgs_-lKhJJ-E2Et5mW3U0 Meeting Tel: +1 646 558 8656 Meeting ID: 865 0612 9819 Facilitator: Nancy Montgomery … Men Care Partners of People with PSP/ CBD/ MSA Support Group 5:00 pm Men Care Partners of People with PSP/ CBD/ MSA Support Group May 2 @ 5:00 pm Meeting Time(s): First Tuesday of each month at 8:00pm EST and first Thursday of each month at 5:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIodu2qrjsqH9UvjxLyw__eP3Ep21zHKmvj Meeting Tel: +1 646 558 8656 Meeting ID: 865 1420 0051 Facilitators: Tom Tait … | Young adult children and grandchildren of people with PSP/CBD/MSA 2:00 pm Young adult children and grandchildren of people with PSP/CBD/MSA May 4 @ 2:00 pm – 3:00 pm Meeting Time(s): 1st Saturday of every month from 2:00pm-3:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZEqceuorTwjH9F2SJcCo7NT9spGM84T_6jn Meeting Tel: +1 646 558 8656 Meeting ID: 857 6203 7955 Facilitator: Emma Wodwaski ewodwaski@gmail.com and Sanjay Geevarghese sanjaygeevarghese@gmail.com Note: This meetup group … | |||||
| Care Partners of People with MSA 8:00 pm Care Partners of People with MSA May 6 @ 8:00 pm – 9:00 pm Meeting Time(s): 1st Monday of each month from 8:00pm – 9:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZIqf-uhrDgoHdfeY_XXwpyWe602VedTnWbK Meeting Tel: +1 646 558 8656 Meeting ID: 867 8292 3273 Facilitator: Tom Tait, tom.tait@comcast.net, 856-725-2450 | People with CBD and their Carepartners 6:00 pm People with CBD and their Carepartners May 7 @ 6:00 pm Meeting Time(s): 1st Tuesday of every month at 6:00pm EST Regisration Link: https://us02web.zoom.us/meeting/register/tZwrcu2vrTIsE9angifxZkh2PCyWI182Ouin Meeting Tel: 213-929-4232 Meeting ID: 611-128-331 Facilitator: Karry Forsythe, forsythe76@gmail.com Men Care Partners of People with PSP/ CBD/ MSA Support Group 8:00 pm Men Care Partners of People with PSP/ CBD/ MSA Support Group May 7 @ 8:00 pm Meeting Time(s): First Tuesday of each month at 8:00pm EST and first Thursday of each month at 5:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIodu2qrjsqH9UvjxLyw__eP3Ep21zHKmvj Meeting Tel: +1 646 558 8656 Meeting ID: 865 1420 0051 Facilitators: Tom Tait … | Music Therapy Group 4:00 pm Music Therapy Group May 8 @ 4:00 pm – 5:00 pm The CurePSP Music Therapy Group provides a platform to connect through music. Music therapy is the relational, clinical, and evidence-based use of music to accomplish individualized healthcare goals, including (but not limited to) motor functioning, … Adult Children of People with PSP/CBD/MSA 8:00 pm Adult Children of People with PSP/CBD/MSA May 8 @ 8:00 pm Meeting Time(s): 2nd Wednesday of each month at 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZUld-mhqzIiHNFXylFSnuvb-4o_0uW7Ydv_ Meeting Tel: +1 646 558 8656 Meeting ID: 818 0095 9865 Facilitator: Laurie Spindler, lspindler16@gmail.com | Care Partners of People with PSP/CBD/ MSA 3:00 pm Care Partners of People with PSP/CBD/ MSA May 9 @ 3:00 pm – 4:30 pm Meeting Time(s): 2nd Thursday of every month from 3:00pm-4:30pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZAvceitrzotGdfteL8WR2LX01SjASUJ1Efr Meeting Tel: +1 646 558 8656 Meeting ID: 842 6151 1733 Facilitator: Diane Breslow, LCSW, dbreslow11@icloud.com and Ileen McFarland, ileen@earthlink.net | |||
| People with PSP 7:30 pm People with PSP May 13 @ 7:30 pm – 8:30 pm Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern (no meetings in August) Registration Link: https://us02web.zoom.us/meeting/register/tZUpce-rrD4qHdVzkfx0e8OSq94-UEu7dcaC Meeting Tel: +1 646 558 8656 Meeting ID: 814 6632 5071 Facilitator: Margo Silk, marsilk115@aol.com, 609-265-7070 | Flying Solo: A group for PSP/CBD/MSA patients living alone or without a carepartner. 2:00 pm Flying Solo: A group for PSP/CBD/MSA patients living alone or without a carepartner. May 15 @ 2:00 pm – 3:30 pm Meeting Time(s): Third Wednesday of each month from 2:00-3:30pm EST April 2023 meeting will meet on the Fourth Wednesday, April 26th Registration Link: https://us02web.zoom.us/meeting/register/tZUtf-qoqj0tE9wLCP-ddhcG3P1duHQPPv8a Meeting Tel: 1 669 900 9128 Meeting ID: 810 8304 6798 Facilitator: Diane Breslow, LCSW, dbreslow11@icloud.com and … Women Care Partners of People with PSP/CBD/MSA Support Group 6:30 pm Women Care Partners of People with PSP/CBD/MSA Support Group May 15 @ 6:30 pm – 8:00 pm Meeting Time(s): First Thursday of each month from 2:30pm-3:30pm EST and third Wednesday of each month from 6:30-8:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIod–prDIiG93cgs_-lKhJJ-E2Et5mW3U0 Meeting Tel: +1 646 558 8656 Meeting ID: 865 0612 9819 Facilitator: Nancy Montgomery … | Anyone Impacted by PSP/CBD/MSA 3:00 pm Anyone Impacted by PSP/CBD/MSA May 16 @ 3:00 pm – 4:30 pm This group is for any diagnosed individuals, carepartners, families, friends, etc. Meeting Time(s): 3rd Thursday of every month from 3:00pm-4:30pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZEtcO6sqzspHtXUtmqAN93amV39diWvEbw4 Meeting Tel: +1 646 558 8656 Meeting ID: 850 7745 0341 Facilitators: … | ||||
| People with MSA 8:00 pm People with MSA May 20 @ 8:00 pm Meeting Time(s): 3rd Monday of each month at 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZUtf-CgrD0uG9CGa7yq3806EcOd8xhmUaqR Meeting Tel: +1 646 558 8656 Meeting ID: 810 8982 6414 Facilitator: Cathy Chapman, 307-332-4144, cec@wyoming.com | After the Loss: A Bereavement Support Group for Care Partners 2:00 pm After the Loss: A Bereavement Support Group for Care Partners May 21 @ 2:00 pm Meeting Time(s): 3rd Tuesday of each month at 2:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZwtdu-urz8rHdSU-qMSeeVgfEAMunr3e7bp Meeting Tel: +1 646 558 8656 Meeting ID: 880 1661 4170 Facilitators: Diane Breslow, LCSW dbreslow11@icloud.com and Meghan Fera, LCSW meghansweeney1@gmail.com People with CBD and their Carepartners 4:00 pm People with CBD and their Carepartners May 21 @ 4:00 pm Meeting Time(s): 3rd Tuesday of each month at 4:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZ0rceGsrTgjE9GT-VhSaf90fppuYOn7cDSA#/registration Meeting Tel: 631-992-3221 Meeting ID: 447-016-877 Facilitator: Janet Edmunson, 508-308-4195, janet@janetedmunson.com Carepartners of People with PSP 8:00 pm Carepartners of People with PSP May 21 @ 8:00 pm Meeting Time(s): 3rd Tuesday of each month at 8:00pm Eastern Registration Link: https://attendee.gotowebinar.com/register/7620701206235337739 Meeting Tel: 562-247-8321 Meeting ID: 739-162-551 Facilitator: Janet Edmunson, 508-308-4195, janet@janetedmunson.com | Care Partners of People with Advanced PSP/CBD/MSA 7:00 pm Care Partners of People with Advanced PSP/CBD/MSA May 22 @ 7:00 pm – 8:00 pm Meeting Time(s): 4th Wednesday of each month from 7:00pm – 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZIld–rqDsrHNVXbnPaifT8em6CI0IOSjSZ Meeting Tel: 914-614-3221 Meeting ID: 732-403-054 Facilitator: Steve Garcia, 201-677-2542, advancedstagespsp@gmail.com | ||||
| People with PSP 7:30 pm People with PSP May 27 @ 7:30 pm – 8:30 pm Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern (no meetings in August) Registration Link: https://us02web.zoom.us/meeting/register/tZUpce-rrD4qHdVzkfx0e8OSq94-UEu7dcaC Meeting Tel: +1 646 558 8656 Meeting ID: 814 6632 5071 Facilitator: Margo Silk marsilk115@aol.com … |
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